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Sharing an MS Diagnosis

Having the support of your friends and family can help you manage your multiple sclerosis. You might find that friends and family members are the easiest people to talk to about your MS. If they don't already know about your diagnosis, they may have already at least noticed that something is wrong. In fact, they may be grateful to hear that you have answers — and that your condition has a name.

Everyone responds to information differently, and you should consider the personalities of each person before you share the news of your diagnosis with them. Try talking about your MS in a way that doesn't scare or overwhelm them. And observe their reaction as you explain your MS to them. That way you'll have a better understanding of how to talk to them in the future.

Getting Advice

If you need guidance on how to talk to others about your MS, it might help to talk first to someone who has been through it before. Connecting with peer mentors from the ActiveVoices program can offer advice to help you navigate these conversations with your loved ones and other people you know.

Understanding Reactions

People react in many ways when they hear about an MS diagnosis. Some people may be silent and thoughtful. Others may be very emotional. Still others may want to have an honest and frank discussion about multiple sclerosis.

You may find, however, that many people will react based on how you talk to them about your MS. If your tone is calm and reassuring, it can help keep the mood comfortable. If you seem worried and anxious, the person you're speaking to may feel alarmed. Asking questions to determine how different people feel about your MS may help you consider and choose the right tone.

Special Relationships

You may have certain people in your life you don't want to talk to about your MS right away — whether it's a child, a coworker, or a romantic interest. That's perfectly normal. Your privacy is valuable, and you should never feel obligated to talk if you aren't ready. It's important to wait for you to feel it's the right time for you to have the conversation.

MS ActiveSource,
there when you
need us.

Speak to an ActiveSource Coordinator
about your everyday MS
questions, plus get
helpful advice and
support that is available
to you when you need it.

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Connect with a peer mentor

Talk to someone who
understands what you
may be going through:

  • Dealing with an
    MS diagnosis
  • Coping with recent
    MS activity
  • Family, work, and life
    challenges with MS
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MS Treatment: The earlier, the better

Studies show that
permanent nerve damage
can happen early in MS,
and that early treatment is
important in slowing
the progression of
disability.


Call an ActiveSource Coordinator at 1-800-456-2255
Monday – Friday, 8:30 AM – 8:00 PM ET